Bringing hope to families facing Batten Disease.

Raising awareness

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Funding hope

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Supporting families

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Raising awareness 🎗️ Funding hope 🎗️ Supporting families 🎗️

Gavin and family before diagnosed with batten disease

Our story begins with Gavin.

Gavin’s Gifts was created in honor of our nephew, Gavin — a bright, joyful boy whose courage continues to inspire us. When his family learned he had Batten disease, they stepped into a world few understand: endless appointments, overwhelming information, and the fear that comes with a rare diagnosis. We quickly realized that no family should navigate this alone. Gavin’s Gifts exists to provide hope, connection, and practical support to families walking this same path. Every resource, every gift, and every act of generosity is rooted in his story and the thousands of children fighting this disease.

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When one family faces the unthinkable, all of us have the chance to make their world a little brighter. Together, we can turn compassion into real support.

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A body of water with a treeline and houses in the distance, under a cloudy sky.

Upcoming events

Gavin’s Gallup 5k

June 13, 8:30 a.m.
Freeman Lake, Elizabethtown, KY

On June 13, 2026, we’ll gather for the first annual Gavin’s Gallop 5K — a family-friendly run/walk honoring Gavin and raising funds for families facing Batten Disease. Whether you run, walk, sponsor, or cheer from the sidelines, every step moves us closer to helping families who need support.

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